Brain Scans Detect Fibromyalgia

Brain Scans Detect FibromyalgiaBrain scans detect fibromyalgia! Yes!! Finally a physical finding to say that fibromyalgia is a disease that’s not psychosomatic.

The Dr. Oz show that was aired on 3/12/12 (I have discovered this show originally aired on 12/3/11) showed a picture of a brain scan of someone with fibromyalgia.  That scan showed an area down the center of the brain and across the top of the frontal cortex in a bright blue.  It was explained that this area of the brain had a very low blood supply.  It was also explained that this was the area of the brain that was directly connected to pain processing and emotional responses to pain.  No wonder the brain doesn’t know when to shut off its pain sensors, it’s not nourished. The scan that detects these changes in brain function is called a photon emission computed tomography (SPECT) scan. It’s nice to know that brain scans detect fibromyalgia.  Here is the link to this show  It’s in two parts and the second part is listed below this video.

On November 3rd a study was release from Marsielle, France.  This study included thirty women, twenty had fibromyalgia and ten were normal.  A 100 question fibromyalgia test was given to these women.  This test also showed differences in brain function between the women with fibromyalgia and those without. This study was conducted by Dr. Guedj and his colleagues. The twenty women with fibromyalgia were diagnosed according to tests that the American College of Rheumatology uses.

An increased score on this test indicated that low blood flow occurs in the left anterior temporal cluster. This area of the brain sets at about the area of the ear on the left side.  This hypoperfusion (low blood flow) showed up the most in the polar and mediobasal cortices.

According to Dr Guedj the results of this test indicated that fibromyalgia is a disorder of the central part of the brain where pain sensations are heightened.

The results of these findings might explain why doctors can’t find any physical reasons for fibromyalgia.

Other tests were given to these women besides the 100 questions.  They were given tests that rates pain on a scale, a French version of the McGill Pain Questionnaire, the Questionnaire Doleur de Saint-Antoine scale, and the Tubingen Pain Behavior Scale.

The only results that were compared to the SPECT scans were the results from the Fibromyalgia Impact Questionnaire.

“The relationship between somatosensory hyperperfusion and fibromyalgia clinical severity is reported for, to our knowledge, the first time and reinforces the central sensitization hypothesis,” they wrote.

Low blood flow to the left anterior temporal region, which is part of the limbic system, could lead to an explanation regarding another aspect of fibromyalgia – Brain fog.

There was another study from the University of Michigan Health Services.  This study shows that persons with fibromyalgia suffer more pain from a gentle pinch that persons who don’t have it.  In fact, the pressure from the pinch has to be twice as much for the persons who don’t have fibromyalgia to feel as much as those who do. The sense of pain shows up in different areas of the brain than the individuals with fibromyalgia.

This study also included fMRI’s that were performed on sixteen patients with fibromyalgia.  fMRI is an extremely fast form of MRI.  It is reported that the results of these tests give a road map of where the pain is felt in the brain.

Simply put, low blood flow to the central and left temporal portions of the brain could very well be a leading cause for the pain and confusion that we fibromyalgia patients suffer with.  Thank goodness it’s not “in our heads” like some physicians still think it is.  Then again, it looks like maybe it really IS in our heads. It’s nice to know brain scans detect fibromyalgia.

Please click on the enclosed links for the full reports mentioned in this article.

Brain Scans Detect Fibromyalia

Thank you to those who pointed me towards the video for the Dr. Oz show.




74 Responses to “Brain Scans Detect Fibromyalgia”

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  1. Liza says:

    This is amazing. Finally after all these years. Now, how do I get one?

  2. ruby says:

    you spelled crohns wrong…this is how it’s spelled

  3. One thing they don’t mention…whether or not the subjects were over ever have been on meds. Could the difference in the brains be from medication?

    • linda says:

      I’ll see what I can come up with on whether medications could cause the difference. It’s possible, I suppose, that they could make a difference. Good question, thanks for sharing. Linda

    • Carol Hansen says:

      I too was wondering whether or not those people tested were on Oxycontin or other meds. Also how long did they have FM? Is it possible to stop taking pain med and if so how are you doing this?

      A few years ago there was a Biochemist Martin Pall at Washington State Univ. I wonder if this new article about our brain and the doctors or chemists that are working on FM might want to contact each other. Maybe if some of these theories might be better served if these doctors would have opened minds and learn from each other in order to help us.

      I’ve been suffering with FM since my middle 30’s and I am now 67 years old (women). I am just existing and the quality of my life is not great. Everything hurts and it has not improved throughout this time. I have been helped by Oxycontin but doctors are now being scared by our government and they don’t want to prescribe pain meds. Read this, doctors are There is nothing else that helps consistently. Short term (hour) walking or stretching and heat will help, as I said, short term. This link is very interesting and I think proves that studies have been going on for sometime using MRI..I am just beginning to read this and plan to contact these people to find out if they might be able to help me and hope you too will read this information… Oxford Univ. I would like to hear from anyone that is working on learning about pain and FM. I know you are not having fun in life and I am tired of feeling pain 24/7. I would love to garden, clean house and just be normal. Lets help each other by learning.

      • linda says:

        I don’t know what, if any, meds the people tested were on. I haven’t been able to find that information – yet. It’s a curiosity though so let’s all see what we can find out and share information. I love that idea, Carol, and have always said education is most important.

        My Dr. has taken me off ALL my pain meds and I’m just using OTC stuff like Extra Strength Tylenol, naproxen, and ibuprofen. Yes, I hurt and many days I don’t feel like doing anything. For the first month after being taken off them I felt really bad but for the past couple of weeks I’ve actually hurt less and have a little more energy. I’m finding it’s amazing what your body can do on its own along with a more holistic approach to pain relief. I’ve increased my B12 to 1000 sublingual units every day. I’ve been on that for three months and it has helped both pain and energy levels. I’m 63 so not that much younger than you are. Could I suggest that you read the articles I’ve written about Vitamin B and other things I’ve been doing. I’m still in pain every day but it’s not that nagging debilitating pain I was in before and I’m not quite as brain fogged as I was. I use everything you mentioned too; heat, exercise and all that helps but, like you say, it can be short term. Best of everything and good luck, Linda

      • Linda G. says:

        I, also, have stopped all pain meds except OTC. (I found mega doses of IB to be the worst offender to my body) I am a 61 yr old woman. CFIDS/FM 19 yrs. I have begun to relearn to actually listen to my body’s signals, and allow it to have what it is asking for (rest, stress relief, ect.) when it needs it. That has given me a new sense of health overall. I look forward to eventual self healing, allowing my body to do its own work.
        I find all this new information exciting. I would love to understand what happened to me. Thank you for all these articles. I am anxious to read them.

    • rayninart says:

      That’s an excellent point. Pain meds and neuro meds can cause low blood pressure and it could mean that the blood isn’t getting enough oxygen to the cells in the body as well as the brain. However, that being said, this sounds encouraging.

  4. Lizzy says:

    Thanks for this. My mom was diagnosed about 15 years ago (after several years of fighting with her doctors and finally finding one that knew about fibromyalgia) and it’s so good to know that there’s an actual physical test that can be performed now. Hopefully fewer people will have to go through the fight that she did and get diagnosed WITHOUT doctors trying to convince them that they’re insane.

  5. Cindy says:

    Truth be known, most “psycosomatic’ illnesses are not just in peoples’ heads. I have been told this about my Fibromyalgia for a decade and about my hemiplegic migraines for decades before that—we now know that migraine disease is a genetic disorder that often has a comorbidity with Fibromyalgia. It’s time to close the book on Sigmund Freud’s ridiculously outdated gender-biased theories (such as psychosomatic illness) and get some new correct ones. I speak from a women’s point of view since “silent illnesses” like Fibromyalgia, migraines, MS, etc. afflict mostly females and are usually diagnosed by male doctors that need to wake up and start helping their patients. Thank God for Dr. Oz because without him a lot of patients would still be suffering under medieval practitioners.

    • linda says:


      I love your comments. You really put a lot into words that, I’m sure, many women would like to. We females are not a weaker sex either physically or mentally. We can’t be and put up with diseases like Fibromyalgia, migraines, and MS.


  6. Jane says:

    I went to Dr. Oz’s website to verify this story, and couldn’t find anything about it. In fact, the show that aired on 3/12/12 was a rerun, according to TV Guide on-line. I’d sure like to watch the episode. Can you give me more info., so I can watch this?

    • linda says:

      I might have gotten the date wrong but I know it was that week. I looked at Dr. Oz’s website too and couldn’t find it which I thought was surprising. I’m just glad I wasn’t the only one that watched it so I didn’t feel so foolish. I hate putting something out that I can’t put my finger on after I’ve said it.

      • Mohamed says:

        I have heard of some Fibro patients benefiting from a gluten-free diet because some Fibromites have a wheat sensitivity. If you have a sensitivity you usually start to feel better after a couple of weeks (according to Dr Oz). If you’ve been off of gluten for a month and you don’t feel better, it’s very possible that wheat isn’t a culprit in your diet. I’d make note of how you feel and discuss it with your doctor at your next visit.

        • Wheat, Rye, Barely, (corn, rice (not wild)) and the list goes on and on from there. I follow my doctor on line gluten free society dot org. It came out that Fibromyalgia was related to glutens. They sure cover that up fast!

        • Erin says:

          My pain doc recommended a wheat free diet. I have been doing it for about 3 months now and it has helped in so many ways. I have less pain, I sleep better, I have more energy, I have no food cravings, my skin and hair are healthier, and I lost almost 20lbs without trying! I still put butter on my popcorn and eat chocolate pretty much everyday! I am now in the process of trying to cut down on my meds (Cymbalta, Flexaril, Tramadol, Codeine, etc). I must stress the importance of trying this!!! It is not difficult and contrary to what a lot of people think, it is not expensive. You do not need to buy gluten free products (although I do splurge on bread because I love toast!). I was diagnosed with Fibro 3yrs ago, symptoms for 8. This is the first thing that has helped!

          • linda says:

            I’m so happy the wheat free diet is working for you. I’ve heard success stories from others about this. I looked at your list of meds and mine seems short in comparison. Best of luck and continued relief. Linda

  7. Rebekah says:

    It’s so fantastic to see more physical evidence about fibro myalgia. Now we just need to find a solution. A psychiatrist who was treating my daughter for anxiety told my husband that he thought I had factitious disorder and asked my husband if he knew what munchausen’s syndrome was. What’s interesting here is that munchausen’s isn’t even recognised anymore my the World Health Organisation, yet fibro has been since 1984. This doctor also doesn’t believe in IBS or Chronic Fatigue or any other condition that he says doesn’t have physical evidence. I’d sure like to live a life free from Tramal, Panadeine Forte, Mobic, Baclofen, anti depressants, continued pain, low self esteem and loss of access to the work force. As I said, can’t wait to find a solution.

  8. kirst says:

    This is such brilliant news, will be printing this off with other documents to take to my doctors. But one question ‘The program was aired on 3/12/12, Here in England that reads 3 December 2012. Is this a miss print?’

    • Tyree says:

      My fibromyalgia started many years ago and I didn’t know it. I always complained “my skin hurts”. The only way I could describe it was it felt like I was sunburned and the slightest touch would hurt. At the same time, I had terrible problems staying asleep. I woke up every hour. I even wrote down the times I woke up one night to give to my doctor. They put me on Trazodone and it works pretty good most nights. Then about 5 years I had an adverse side affect to Simvastatin where it caused severe muscle pain. I truly believe that’s what started my fibromyalgia. First it was in my neck, right shoulder and armpit area. I put heat on it until I was burned and ice on it until I was frostbitten but nothing worked. My doctor did about every test imaginable including EMG, and MRI. Finally I was referred to a rheumatologist and was “officially” diagnosed. I took Nurontin (3600mg daily) and Effexor XR for about a year and all that did was make me gain 60lbs. Now I’m on Lyrica, and still on Effexor. At first the Lyrica seemed like it worked but now it just takes the edge off. I just asked my doctor about Topamax which a relative takes for chronic pain and she’s looking into it. In the meantime, I just sit on the porch in the middle of the night when nobody’s around and cry because I’m so tired of the pain.

      • linda says:

        Boy, your fibro sounds a lot like mine. I remember when I was in grade school coming home complaining of sore skin and aching legs. I graduated high school in 1967 so you know how long ago grade school was. It hurt to climb stairs, run, and do several other things kids my age were doing. Of course back then it was chalked up to “growing pains”. The doc I have now is playing with my medications and as I put in a previous comment I’m going to fire him if he doesn’t start working with me rather than messing with things that are already working. I’d love to go back to Wisconsin just to see my old doctors. They had me on Trazadone, Tramadol, and Extra Strength Tylenol and I was doing fine. Anyway, take care of yourself and keep trying. Linda

        • Amanda says:

          I started to experience symptoms when I was in 7th grade, I’m almost 27 and I feel like I’ve been robbed of my teens and adultolescenes. I haven’t worked since 2013, I feel like it just keeps progressing. I’ve tried a lot of different medications and nothing worked except Lyrica, but it only helps so much and I’m already on the maximum dose. The fatigue is absolutely awful, the anxiety seems to be getting worse. I can’t handle stress at all and feel like that’s all my life is, is stress. I leave my house maybe 1-2 times out of the week. I feel like I know more about fibromyalgia than any doctor I’ve seen. It’s so frustrating!

          • linda says:

            I’m going to put you in touch with a great Facebook page I refer to often. It’s written by a lady who has fibromyalgia and she posts all sorts of good tips with essential oils. I could post the same info as she does but I’d be stealing from her. The page is “Fibromyalgia Management with Essential Oils”. I use a lot of essential oils to ease symptoms. Peppermint and bergomot are good for pain and energy, lavender and chamomile for depression and sleep, patchouli is good for moods and so is ylang ylang. They don’t take it all away but they do help.
            The medication I use is Savella and like Lyrica it doesn’t help all together. That’s why I started using essential oils and recently I started taking Tumeric capsules. Tumeric is nature’s anti inflammatory. I’ve only been on it a few days so I don’t know if it works or not.
            I’ve been in touch with others who are really suffering right now with anything from excruciating pain, depression, insomnia and anything else that goes with fibro. I’m on that list too.
            Like you my symptoms started earlier – around the age of 10 with me but it was called growing pains in the 50’s and we were told I’d outgrow it.
            Do some research to find a natural way to supplement your medication. Be sure to check with your pharmacist to make sure there are no interactions.
            I’ll keep you in my prayers for relief. Have a blessed New Year, Linda

      • Jackie says:

        My Fibro also started many years ago (20 yrs) I know the feeling of your skin hurting some nights the blankets would hurt and I couldnt sleep, I still have nights like you do where I wake up every hour, but I started taking melatonin (all natural in the pharmacy with the vitamins) and I actually stay asleep for a few hours now.I am on lyrica and savella for the fibro and flexaril for the leg spasms so far this combo has given me the most relief. I am so happy that FINALLY! fibro can be diagnosed with real physical evidence. For years I had Dr’s looking at me like I was crazy or telling me to leave the state move and start a new life I’d be fine, GGGRRRR!!!! Thank God I now have a wonderful Dr that keeps trying to get me as much relief as possible. Also like you, Tyree, I spent many nights on the porch crying. The pain is not easy to deal with many days I go into the bathroom and cry for a few minutes (so no one sees me) then I keep going with what needs to be done. I pray things get better for you. try to stay strong.

  9. Barbara says:

    I have been diagnosed by 2 male Doctors, One, being my female Doctor at the time who put me on an extremely Highly Medicated Narcotic Pain Relief (which I could have actually died from) but when I switched Doctors, (2 male Doctors) whom referred me to a specialist, got diagnosed with my Fibromyalgia within 20 minutes of my appointment! I have been on a mild narcotic medication (now taken off the market) for the past 6 yrs. and am maintaining to pursue my daily quality of life the best I can! Thank Goodness for my knowledgeable doctor, who cares about his patients! I still try to maintain my quality of life to the best of my ability,, but still suffer with my extreme body pain daily!

  10. carl says:

    I wish that they would include at least 2 men in their study. I have both Fibro and Lupus.

    • linda says:

      I’m sorry you are suffering with both. Fibro is relatively rare in men, as you know; but, I agree there should have been a representation. Best of luck with controlling it.


      • carl says:

        I am lucky in that my PCP has me seeing an incredible doctor who doesn’t “think it is in my head” like most other doctors I have seen. I am in a fibro support group on facebook, and can’t believe the horror stories that are told about doctors who just don’t get it. And of course, I am the only male. 🙂 Makes for some interesting conversations, but I participate as much as I can, and interject the male point of view when necessary. It is good that there are some things on the horizon for helping better diagnose this debilitating condition.

  11. Lisa says:

    Here is a link to a video clip of the episode that shows the brain scan.

  12. Sharon Snell says:

    So, it really IS in the head!!! Since I’ve had scrunched vertabrae in the neck . . . or is it thick blood? Did this cause the tension or did the tension cause this? Hmmmm . .. nice to have confirmation and a path to pursue. It was not caused by meds, as asked by someone above. Stress perhaps? Yes.

    • Heidy says:

      I love this too lol. I never thought of fibro that way, but perhaps it is even wise. Just love your sense of humor with it. Tend to do that as well. Laughing at it all is far better than crying. I wonder how many of us with FM have had or still have a panic disorder? Mine is under control now. Haven’t had a full out panic attack in years. Then again, maybe it is a physical reaction through pain now instead. Interesting contemplation, that.

  13. Jennie says:

    I was able to access the clip, and I am SO grateful that they are finally making some progress on establishing Fibromyalgia as a “real” condition. I can tell you, it feels pretty real to me on a daily basis! Perhaps with having someone as visible as Dr. Oz focusing on the subject, maybe we can move forward from the argument around sanity (or lack thereof) toward effective treatment. I’m not knocking the treatments that we have, but all of the prescription meds out there are accidental treatments. Someone was taking the drug for one thing, and realized that their fibro symptoms improved. I would like to see intentional treatment, meds designed to specifically treat fibro. I guess I just want validation from the pharmaceutical industry. We NEED new meds that address the symptoms without disabling or dangerous side effects. Too much to ask? I hope not.

  14. Mighty Slug says:

    As a sufferer of fibromyalgia this is great news. Through my own research & the Experts a connection is made with EMR (electromagnetic radiation) exposure and episodes of brain fog, tiredness etc. so although great news that this machine can reveal what is actually happening inside the brain, the machine’s EMR emissions can add to the condition to make it worse. We would be better off with a
    more natural diagnostic tool such as encephaloscan which shows up the regions of the brain without
    harmful EMR from the scanner reported here.

  15. Arlene Carmody says:

    I asked at our local hospital radiology department if they were doing scans for Fibro. They didn’t have a clue 🙁

    • Arlene Carmody says:

      I also showed this artical to my Rhumatologist. He said this type of scanning device is outdated here in the USA. So if you have one near you…I guess it’s worth a try to document Fibromyalgia. I have had MRI’s of my brain and I have a lesion that needs to be watched for MS by my neurologist. No one has claimed that it is proof of fibromyalgia. I am so ill. In just one year, I am losing more and more in my joints. I can only walk or stand with the use of Steriod injections and they wear off to soon. I still hurt everywhere everyday. I am in bed most of the 24 hours in a day. So I am very disappointed with this thread/story

  16. tracey says:

    this is a great step forward in recognizing and hopefully curing fibro. however I’d like to see some information on why people with fibro also have many other conditions e.g i have been recently diagnosed with both TMJ and swollen turbinates and get a lot of facial pain, on top of the fibro. so is it linked yet again to this low blood supply and/or heightened sensitivities, or are they truly separate conditions?

  17. skys daughter says:

    A brain scan to prove the fibromyalgia diagnosis should become sufficient for medicare and medicaid assistance.

  18. I am surgeon myself, had severe anemia due to bleeding and nutrionist deficiency. I developed fibromyalgia due to repetAtive stress. I. Have completly recovered now. Being a doctor I completly agree that fibromyalgia is due to decreased blood supply. I would like to know if damGge to brain is reversible.

  19. This is very good news! Finally something specifically pointing to our symptoms in the brain. Thank you so much for sharing this. I will pass it on to lots of people.


  20. madeline says:

    my specialist did an MRI of my brain in the 90s. he found certain calcifications. seems to me that these calcifications could lead to low blood flow. of course, he didn’t have all this info about blood flow at that time.

    he, also, offered me gamma globulin intrevenously (sp?), but i have a needle phobia that prevented me from trying it. he promised i’d feel better and have much more energy.

    on the down side, he put me on oxycontin right from the start which is so dangerous. i quickly got off of it because i listened to the advice of my family dr on that one. she was shocked he did that at all.
    the specialist was quite cutting edge. more so than i, as i was trying to hold down a very stressful and physically demanding job at that time, so taking so many drugs was not in my game plan.

    i’ve gone downhill since the onset of fibro. it’s caused me many side effects, as i was just about bed ridden from 2000. i’m sure if i’d stayed more active i wouldn’t have the intestinal and inoperable spinal problems that i have today. exercise is great medicine and now severe scoliosis has me in a wheelchair. i’ve slept my life away. thanks, fms, cfs, ibs and all you other syndromes that i might have and don’t even want to think about! lolol

    great article! thank you!

    • linda says:

      You’ve really been through the mill, haven’t you. Thank you for your comments. The ones about not exercising are a good lesson to those who think they can’t or shouldn’t exercise because they hurt too much. There are days, of course, when you really do hurt too much to do anything but even a 5 minute walk will be of some benefit. Hang in there dear girl. My thoughts are with you. Linda

  21. Cindy says:

    I have a lot of different medical problems, including severe osteoarthritis & fibromyalgia. The weird thing with me, though, is that narcotic pain killers have absolutely NO effect on me. Vicodin, Tramadol, Morphine, Codeine…not a lick of pain relief. The only thing that DOES help is Advil (Ibuprofen), but I have to take as much as 2400 mg a day. Now my dr says that my liver function is being compromised. Does anyone else have this problem? What do you take for pain?

    • linda says:

      I’ve found that Tramadol is the best for me but my Dr. took me off it because it could increase my chances for seizures. Now I’m battling pain that’s never quite under control too. Ibuprofen and Naproxin help some but never take it away. I’ve found that aspirin works the best for me. I take three tablets three to four times a day. Unfortunately it also acts as a blood thinner and I bruise if I’m barely bumped and I bleed more if I get a cut. My Dr. put me on Hydrocodone but I quit taking it because it caused constipation and just made me feel “icky”. Know what I mean? Good Luck in your search for what works. Linda

    • Linda G says:

      The only meds that helped me where mega doses of IB. It causes extreme bruising, I assume it being an aspirin product it was thinning my blood. When I stopped the IB, the bruising stopped. A vein tech told me that veins don’t replace themselves. I now have swelling and mottleing on my legs that seems to be ‘undiagnosible’. I believe it was from 15 years of IB and bruising. If it was doing that to my skin, its scarey to think of what it has done to my insides.

    • Linda G says:

      I took 2400 IB for probably about 12 years. Over time my blood got thinner and thinner. I would bruise and have nose bleeds. I have pretty much stopped the IB, but found that now any aspirin product causes the same problems. I kinda think I’ve wrecked my veins/(arteries?) by allowing this blood thinning for so long. My fear is also, that if I have been bleeding and bruising so badly that I an see, what is going on inside me, where I CAN’T see. I am back in pain and barely able to do anything physically. I haven’t been able to find anything else OTC to help, and I really don’t want to go back on any RX. I don’t trust the side affects. What was also surprising was that the IB did help with the fatigue of CFS, and I haven’t found anyway to regain that effect.

  22. Shelley says:

    I was diagnosed with fibromyalgia about a year and a half, which took over 2 years. I already knew what I had but there were no doctors in my area that weren’t booked solid. My own doctor really didn’t seem to get what I was going through and I gave up on even talking to him about it.

    But the last time I was there for a physical, late last year, he made a comment that kind of shocked me. I was telling him about the challenges I was living with and he said, “well you realize that this is pretty much in your head, right.?” Well, I think I said yes I realize that, because | just didn`t know what to say. Since seeing The Dr. Oz show and now doing some more research, I plan on showing these studies to my doctor when I see him in a few weeks. Then I can tell him this really is in my head, and can be seen on a bran scan!

    Maybe now he`ll help me get the financial assistance I need. This condition becomes that much harder when it takes away your ability to work or survive. My life has gone into the toilet in the last few years and for the most part people just think I`m lazy and don`t want to work. I can certainly see why depression and anxiety are things most people with FM struggle with. Pain, exhaustion and worrying about how you`re going to survive would depress just about anybody.

    Anyway, I`m so glad to see that progress is being made on proving that this condition really does exist.

    • linda says:

      Good luck with your doctor. I hope he now realizes that what you have is real and the problems you have are because of the disease. Good luck too with any disability claim you might be thinking of filing. I’ve been turned down twice for my disability because ‘I wasn’t sick enough and should be able to do “something”‘. Also your age will factor into whether or not you get disability. If you’re close to 62 you probably won’t because they figure you’re going to retire soon anyway and don’t want to waste the money retraining you to do something else. I got this information straight from my rheumatologist because he deals with disability all of the time. Linda

  23. Teresa says:

    I just want to say that I was diagnosed w/Fibro in 2005 (my mother had it for yrs & she finally encouraged me into going to be checked.) I went thru the “in your head” comments, you need more exercise, eat better etc. I was put on pain medicine since 2005 & this year I had to got thru detox to get off these pain pills b/c I’m an addict now, really???? Once \I got out of that for 8 days, I was referred to a Dr. that prescribes Suboxone and yes it is a wonder drug…it has kept me from craving any of the pain meds that I was on. However, my original Dr. (who I adored) didn’t quite understand my getting help for getting off the pain pills she gave me & she dropped me as her patient. It was very dishearting b/c I really liked her but she basically said since I had the Suboxone in my system then she couldn’t treat me. She’s a family Dr. who cannot presrcibe the suboxone. I’m doing great except my concern now is am I’m goin to be labeled an addict?? My new Dr. insists I attend 4 N. A. mtgs a week, read the Bible 30 min every day and work my 12 step N. A. workbook w/him. He says it like this: if we don’t do what God would want us to do, then He will not do for us….but then he went on said that’s the same as I will treat you also. Stick to my plan or you’re out. This Dr. is a Seven Day Adventist & he really has pressured me into his beliefs just told me last week that it took God 40 yrs to get Moses out of his “attitude”, so surely I can imagine the pressure he has on him trying to fix me in just months time. I’ve been going to him since March 1st I have never met a Dr. like him ever!! Its like if you don’t say your “higher Power” is God, then there’s not much more hope for you. This was the 1st day of meeting him & it’s only gotten worse. I’m an emotional wreck b4 going to see him & usually after the appt. is over, I’m sitting in my car crying b/c he makes me feel like I’m the biggest failure. I was approved for my disability last yr for Fibro but also an anxiety disorder (which he says doesn’t exist). Its hard enuf to have these issues in my life but now I have learn more about this Dr’s beliefs & he tends to play God. I don’t sleep & haven’t since a child, have been diagnosed w/insomnia but he says to run barefoot thru my backyard b4 bedtime to get in touch w/Earth & that the grass is a great foot massage. Pls help me in knowing what I should say to this Dr. or maybe just find a complete new Dr. I’m so happy to hear that we’re not crazy after all, I actually cried when ready this article & your stories. I don’t feel so alone now so thank you all for sharing. Sorry my 1st comment was so long but I had a lot to say at first, lol. Have a Blessed day my fellow Fibro friends:))))

    • linda says:

      I’ve read your comment three times and am still not quite sure how to respond to everything in there but I’ll try.

      First of all, I’m sorry you’re having such a terrible time with your pain control, anxiety, and insomnia. Unfortunately, we who have fibro have one or all of these things all of the time; but, I’m not telling you anything you don’t already know. Let’s try to tackle them one at a time. I would like you to read the articles I’ve written on pain control and sleep problems. I could write a bunch of stuff here but it’s better if you just read the articles. There are many different things you can try for both of these problems that aren’t narcotic. Now that I’m learning how I’m finding meditation works wonders. One thing I don’t think I mentioned in my articles on sleep is Chamomile Tea. Celestial Seasonings makes a nice blend called “Sleepy Time” that I’ve used. It also helps with anxiety a bit.

      Now to your Dr. Your description made me more than upset. First of all, it isn’t his place to ‘force’ you to believe as he does. Your spiritual beliefs are yours and if you happen not to have any it’s none of his business. I know from my own experience that having that faith base has been a big help but that’s MY belief and I wouldn’t force that on anyone. It sounds like he’s more of a faith healer than an MD. Is that the case? The idea he has about walking barefoot in the grass isn’t a bad one though. The massaging action could work a bit like reflexology. My chiropractor told me that walking barefoot on the beach is a good thing too. In all honesty I would suggest getting a different doctor. When you talked about crying before and after your appointments it was a dead give away that this isn’t the right doctor for you. Your doctor is supposed to help you feel better not like a failure. Teresa, I wish you all the luck in the world. I’m here if you want to correspond further. Sincerely, Linda

    • madeline says:

      definitely find a new doctor!!! RUN! and report this guy to the AMA!

  24. june price says:

    Thank you. Finally proof not attention seeking as I’ve been told many times, or its all in your mind !?

  25. Gisela says:

    Finally some one find out and maybe others can understand how we feel Thank you Dr . OZ god bless you .

  26. titanium says:

    I had this in 1995 and yes, I was diagnosed. This is a great test to have in your file.
    Now – convince the INSURANCE companies about this finding. They said the spec-T is ‘inconclusive.’

  27. Much like other invisible disabilities, it is reassuring and pivotal that medical science can break through with results that show an abnormality. It is time!

  28. Shelley Kelley says:

    Carol Henson: I have known about the brain scans for almost two yrs now from med journals. Also, some show similar lesions that MS patients do have in their brain. I have been tested three times for MS and a few brain scans.
    I belong to a group for FM called Fibro Friends and Support Group that has over 200 members all involved in either having the disease or helping a loved one with the disease. The group is the most supportive and caring group I have found yet. Please come join us. It is a closed group in that you may post anything on the group wall and only group members will see the posting – not the general public so it is a safe place for everyone. We truly care and do continual research on medical treatments, improvements, different medications, etc. We do not diagnose or prescribe, only exchange our personal knowledge with others.
    My next response is to your just existing. I have been where you are and I am 6 yrs younger. I recently started water walking with a therapist for my trainer. I have Humana Choice PPO medicare plan and it includes a free Y membership through the Silver Sneakers program which entitles me to enroll in any class available for free. Though I have the membership I am still using a therapist until the routine is truly ingrained as a routine. Water walking is not a cure all or instant relief, but with time and patience it will increase you endurance so you may live a more normal life instead of just existing – which I was also for more than two years. I could not even help cook for more than 5 min at a time. Now I am up to almost an hour after only two months of therapy twice a week. I recommend this form of exercise to anyone who is truly feeling like they are just existing. The water makes you feel weightless and your limbs and complete body moves easier due to the difference in gravity change and weight support from the water. The real bitch is getting out of the water and getting dressed to go home. I manage to do so, but am exhausted for several hours after. The next day is so much better I feel like I have been given a second chance. I also have DDD, OA, Spondylothesis, both knees replaced, a lower back fusion. I was planning on having a neck fusion, but the damage is too extensive and would require a 13″ to 15″ bar from ther base of my skull to the center of my back. I would not be able to turn my head or drive ever again. So no other fusions down the line; only pain management. Please try the water walking or water aerobics for arthritis patients. There are so many of us in the same boat. Please, if you need to chat or more information I would be glad to give of my time and knowledge to you. I truly care about my fellow man and willing to try to help anyone who really wants help. Take care of yourself and I am hoping better days are ahead for you. <3 Namaste. Shelley Kelley

  29. Shelley Kelley says:

    Run, do not walk to the nearest exit from this dr’s office and get a new one. You should feel comfortable with any medical professional you are seeing for help whatever the reason. This dr is not right for you or you would be in much better shape when attending an appointment. Any medical professional who is forcing you to adopt his religious beliefs has no right to be practicing in my opinion. Religion is a freedom of choice – not a command to adopt a religion you do not agree with now or ever. This dr is full of BS. I will not go ointo my opinion about the drug addiction. There are too many other areas you need to address immediately – like finding a new dr.

  30. Deb Stemp says:

    This is great news….now how do we get the oxygen & nutrients to that part of the brain…..what doc do we go to?

  31. sandra says:

    About time they found SOMETHING to explain the pain & other fibro aymptoms. maybe they can find a suitable treatment or even cure now!!

  32. Larene says:

    I have been diagnosed with Fibromyalgia 2013, but now the Doctors are looking for MS. I recently had a Brain Scan (MRI) 2014, but No one has mentioned whether Fibromyalgia was evident in my Scan or even if they looked for it ? And, they are still not sure if I have MS or not ?? Waiting and waiting and waiting for return visit to Neurologist. Very Frustrating.

    • linda says:

      From the research I did, fibromyalgia might not show on an MRI. It has to be a PET scan. Hope you can pinpoint what’s happening soon. Linda

  33. Freda says:

    I worked for our government that started a first of its kind (1994) computer recycling in the Federal Prison Industries called Unicor. See (SVTC.ORG) e-waste in the Federal Prison Industries (Toxic Chemicals). It began in our small community that didn’t have many choices of doctor s. All material from the airport s that had sat since an came from the Vietnam War and the Desert Storm, and material from other areas that we were told that it had never been de-contaminated. (Cross contamination) plus all the old obsolete computers and crts that had radiation, arsenic, cadmium, beryllium, barium, the list goes on. We were ordered to have inmates bust the monitors with hammers to retrieve the gold and other reusable parts… Ohhhh the dust. 127 degrees in tha hot building. Now many have died and many are sick. I also was diagnosed with Parkinson disease fibromyalgia. Colon problem. Nervous system deteriorated bones and the list goes on. They have been able to cover this story up an sweep it under the oval rug. No care to the sick and dieing. Toxic Chemicals exposure had a great affect on my fibromyalgia. The pain is so horrendous. Stress the tension in the neck area. The fatigue and burning sensation. Joint pain.

  34. S.hilton says:

    I have had fibramyalga for some years.the pain is hands and knees are worse.i bite into my hands and hit than with hard objects as the pain is so bad and has put so much restriction on my life.i am so glad they have found it to be an illness and not hypervondria org depression.the pains depressive.

  35. Efren says:

    Hi Teresa, my name is Efren and I also have wide-spread pain from fibro since 1997, have you found anything worthy of helping you deal with your fibro symptoms yet?
    I think I can help you mitigate some of your pain.⛅🍀😇

  36. tonymacx says:

    Hi peeps, I am a 57 year old male who has been diagnosed with Fibro and my doctor has read all my notes and says i have had it UNDIAGNOSED since 1990. Do we have any updates since these tests in 2012.??? I have tried all the tat that doctors are allowed to give in England and i am now on the highest doses of all my meds and these can only be changed by my Pain management team Bi-monthly.

  37. linda says:

    Undoubtedly one of the best layperson’s explanation of chronic pain I’ve read. Thanks for your research and willingness to share. Keep up the good work with your blogs. I know it’s hard to concentrate because of the pain at times; I’m there more than I care to admit and it’s hard to put a decent article together. You have given me inspiration to keep on trying and an idea for my next article. Linda


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