Fibromyalgia, My Personal Journey

fibromyalgiaFibromyalgia was the diagnosis in the fall of 1996.  My journey with this stuff began, as far as I can remember, when I was about ten years old.

I can remember telling Mom that my legs and arms hurt and I didn’t feel good.  Her response was, “It’s just growing pains. You’ll be over it soon.” That was response many had to the unexplained aches and pains that kids my age were having.  I was taken to a doctor once because Mom thought I might be coming down with something.  The doctor basically said the same thing, that it was growing pains. The name fibromyalgia wasn’t in existence then nor was the method of diagnosis.

As I entered my teenage years the pain did let up some but I still ached after over exerting myself and by living on a farm that was easy to do.  I am an only child so I cleaned barn with a shovel, loaded hay bales, shoveled oats and corn, mended fences, cleaned house, worked in the garden and did other chores that had to be done to keep the farm going.  When my parents quit farming they became custodians at a school and I helped clean the school too.  Some days after a hard day’s work I would ache so bad I would be in bed by 8:00.  Other days I’d be glad to go dancing afterward.

Shortly after high school I got married and started my family.  I was 19 at the time and thought I had the world by the tail.  All was well until 1981 when I had ostomy surgery because of Chrons Disease.  Several years after that surgery the pain came back with a vengeance, that was in 1995. At that time I had a job in an office where I was behind a computer all of the time and the stress level was quite high.  Plus my husband and I were taking care of our two grandsons while our daughter worked and went to school.

I started aching in my arms, shoulders, neck and head then one day the pain went into my knees and feet.  At that point I went to the doctor and went through the tests for thyroid, lymes disease, lupus and arthritis.  After several months of being poked and prodded my Neurologist figured out it was fibromyalgia.  That was in the fall of 1996.  Since then I’ve been on all sorts of medications and my journey of trying to get a handle on things that bring me relief.  Some of the things I write on have worked, some have not.  I will continue my journey until I find what gives me the most relief…Or maybe I’ve reached the end and am stubborn enough not to give in. Fibromyalgia ain’t no fun!

Keep smiling, love often, love one particular someone unconditionally, pray. Maybe most importantly love yourself.  Know that no matter how much you hurt you are still special and are worth something.



Fibromyalgia, My Personal Journey

5 Responses to “Fibromyalgia, My Personal Journey”

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  1. Reegan says:

    Time to face the music armed with this great infomrtaion.

  2. linda says:

    Dear Reegan,

    It’s hard to come to terms with your fibromyalgia. During all of the time I’ve been dealing with it I still fight it. I recently lost a job because the pain and brain fog were so bad I messed up. I was allowed to resign with notes in my file that it was because of the fibro I was leaving.

    What I’m getting at is that I hope you do the best you can do with all that you have. Keep doing until you absolutely can’t anymore. Don’t be afraid to check out the essential oils I’m writing about.

    I hope you find relief as I hope this for everyone with this stuff. Stay strong and let me know how you are doing.


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