This is a letter I actually sent to my doctor today. He’s been playing around with my medications and not having much success. He wanted me to let him know how I was doing so I put it in writing so there wouldn’t be any misinterpretation of what I’m going through. Many doctors like to get things like this in writing. I know mine in Wisconsin did before we moved to Florida. It’ll be interesting to find out if this Florida doctor feels the same way.
I’m writing to you because I can’t afford another $100 visit to the office right now but need to let you know that the combination of hydrocodone & tizanidine at night and 800 mg of ibuprofen during the day isn’t working.
I’m not sleeping and I hurt more during the day. When I take the hydrocodone & tizanidine I fall asleep almost right away but only sleep for 2 – 3 hrs. then I’m awake the rest of the night until about 4:30 and then I sleep until 5:30 if I’m lucky. Either that or I just don’t go to sleep until around 3:00. I put up with this for over a week and then fell back to my trazadone (1 – 100 mg tablet) along with the tizanidine at night and I’m not taking the hydrocodone at all. It started to make me itch and feel wired. For night time pain I just take the migraine formula of Tylenol along with my nightly aspirin. It seems to be working as good as anything else I’ve tried. I feel the hydrocodone & tizanidine should be looked at very closely.
As for the ibuprofen; it worked for a while (about a week) and then made my stomach so raw I thought I was going to vomit. YES, I’m avoiding the tramadol. I’ve only taken three tablets since I saw you on 4/14/12. To get around daytime pain I’ve been using the same migraine formula of Tylenol and massaging the worst trigger point that I can reach by my right shoulder blade. I still hurt but push my way through the pain to get stuff accomplished.
I’m still taking the Savella as you told me to but I’m not sure if it’s helping anymore or not.
I don’t have much pain as long as I do absolutely nothing. Unfortunately I still have to work; I received the second denial on my disability. I also have a home and family to take care of. I’ve tried heating pads, ice packs, chiropractic (which helps for a few days), massage therapy, essential oils, muscle rubs and a myriad of other things to get and stay comfortable. Things that have sort of worked for me as well as chiropractic treatments are: heating pads, gentle stretching, and an essential oil combination of bergamot, peppermint, lavender, and clary sage. Going for a walk as long as I don’t overdo will sometimes help.
It seems that the older I’m getting the more sensitive to the pain I’m becoming. Is that just part of aging or is the fibromyalgia actually getting worse?
If you get the impression that I’ve had all I want of this for now you would be correct. You deal with people that have chronic pain all of the time so I’m sure this isn’t the first time you’ve heard this statement. I truly wish that we could hit on a combination of exercise and medication that would let me be comfortable for a few days, or even a few hours, at a time.
I was doing better on the old combination of medications I was on which was 300 mg of trazadone at night and 50 mg of tramadol 2 – 3 times a day. I know that the tramadol can increase my chance of seizures but I had been on it for over 10 years and would think that if I was going to seize I would have by now. I won’t yell too much about that because the Tylenol and aspirin seem to be working almost as well at this point in time.
What I’m concerned about is the lack of sleep!! I can’t go on with only 3 – 4 hrs. total sleep every night. If you truly don’t want me to take the trazadone then you need to come up with something that will actually help. I’ve thought of trying melatonin but don’t want to until I hear from you. Also, I won’t take Ambien, I’ve heard too many horror stories about it from people I know.
My next appointment is 6/15/12 but I hope to hear from you long before that. Oh, and just so you know; the brief time it’s taken me to type this letter has increased the pain in my shoulders, arms and neck from a 2 to an 8 and that’s after my morning Tylenol. I took it over an hour before setting down to do this.
Thank you for taking time to read this. It’s often easier for me to put things in writing that to try to explain them vocally. I await your response (soon I hope).