3 responses

  1. Cynthia
    September 18, 2012

    I don’t know if my fibromyalgia has anything to do with my water retention or not. I’ve had both conditions for at least 30 years. Over the last three years both have become disabling in their own way.

    What every doctor I’ve ever had thought was from eating too much salt (they didn’t believe me when I told them that I cook from scratch with no salt. Any salt I get is in processed and fast food which we eat rarely.) has been diagnosed as hereditary lymphedema type II, an abnormal buildup of lymph fluid resulting in severe swelling of the legs. Thankfully, I have a wonderful, supportive husband who “forced” me to make an appointment with my doctor (and went to the appointment with me) when my shins turned bright red, were warm to touch and the lymphatic fluid began weeping through my skin because there was no where else for it to go. That was the day we discovered it wasn’t just water retention and I was very close to having the bacterial skin infection cellulitis. Now I wear thigh length very firm prescription medical compression hose from the time my feet hit the floor in the morning until bedtime.

    The hose are so painful to put on due to my fibromyalgia that in the beginning my husband had to help me put them on and take them off. My legs feel so much better now but if I’ve been on my feet a lot during the day, they still swell some and my husband has to help me get them off because of the pain from getting them off.

    I would love to know if others with fibromyalgia have this problem.


    October 7, 2016

    Hi Cynthia,

    I am so glad I read your letter because I have fibromyalgia and recently have developed severe fluid retention in my legs where my skin is changing colour and it does not look good that it should be left like it. My doctor just says it comes with the territory. I don’t know where else to go for help. Any ideas?

    Regards Chris


    • linda
      October 7, 2016

      I don’t have any other ideas at this point. If you are on Facebook there are a few blogs out there that might help. One I particularly like is Fibromyalgia Humor and Positivity. It’s a closed group for those of us that have this and their caregivers. Your doctor is right, it does come with the territory and, after 20 years, still plagues me all the time.

      Regards, Linda


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